tag:blogger.com,1999:blog-8042257301491047451.post2828789855448327390..comments2024-03-08T00:18:19.299-08:00Comments on See Through My Eyes - Stargardt's Disease: Hi AllChrissy Reneehttp://www.blogger.com/profile/03135586312372681795noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8042257301491047451.post-5343333954932077612013-03-26T04:45:33.025-07:002013-03-26T04:45:33.025-07:00Hi, I am debs, I am a mother of Florence who is no...Hi, I am debs, I am a mother of Florence who is now 10 , she lost her most of her sight at 8 , now they are saying it could be safeguards. stargardts have end-users all the tests you have spoken of. We have started gene tests this week. If my other daughter does not have the mutant gene. There may be hope . However previous tests show her retina to be reading quite low too. Let's try and keep in touch The family Wadhttps://www.blogger.com/profile/01131512353099429954noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-34409025191001780202010-12-14T14:46:29.807-08:002010-12-14T14:46:29.807-08:00Hi Mike!!
It's great to hear from you! And tha...Hi Mike!!<br />It's great to hear from you! And thank you for your support!<br />I'm also looking forward to proving that doctor you first saw wrong! I think with the advances in medicine today it is inevitable that someone somewhere will eventually find something to treat or even halt the progression of our disease!<br />Thanks for sharing your experience!Chrissy Reneehttps://www.blogger.com/profile/03135586312372681795noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-63257710780013246552010-12-14T11:51:43.811-08:002010-12-14T11:51:43.811-08:00Hi,
My name is Mike, and I'm 28 and live in ...Hi, <br /><br />My name is Mike, and I'm 28 and live in Calgary, Canada. I was diagnosed with Stargardt's Disease when I was 6 years old, so I have lived with low vision for most of my life. That being said, I think since I haven't known any other way, it has helped me cope with adapting to life with low vision - I live a normal life and do everything I want like snowboarding, golfing, hockey etc. <br />I came across your blog because I have Google Alerts set up to send me an e mail any time the keyword "Stargardt's" appears in any news article or blog. I've been following all the developments on possible breakthroughs in treatment in the area of stem cells and gene therapy for a number of years now, and it's getting pretty exciting. <br />When I was diagnosed, my mom told me that the doctor said that there would never be a way to cure this disease in her wildest dreams. She basically said that I am stuck with it and should just learn to live with it. It's starting to look like that doctor could be proved wrong, but we will see what happens in the upcoming years. <br />Anyway, I just thought I would respond to one of your posts to support you, and let you know that i will follow your blog now. I'd love to hear more from you, so if you like, you can e mail me. <br /><br />All the best,<br />MikeMike_Chttps://www.blogger.com/profile/13908069089827342137noreply@blogger.com