tag:blogger.com,1999:blog-8042257301491047451.post5164812375818098592..comments2024-03-08T00:18:19.299-08:00Comments on See Through My Eyes - Stargardt's Disease: Update on Current Clinical TrialsChrissy Reneehttp://www.blogger.com/profile/03135586312372681795noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8042257301491047451.post-91299898124327058432016-02-07T06:42:17.179-08:002016-02-07T06:42:17.179-08:00Doug - my husband is scheduled for SCOTS trearment...Doug - my husband is scheduled for SCOTS trearment for March 1, 2016. I would love to hear more about your experience.<br /><br />Rebeccahttps://www.blogger.com/profile/15636670432046766373noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-40240109792388881222016-02-07T06:41:31.894-08:002016-02-07T06:41:31.894-08:00Doug - my husband is scheduled for SCOTS trearment...Doug - my husband is scheduled for SCOTS trearment for March 1, 2016. I would love to hear more about your experience.<br /><br />Rebeccahttps://www.blogger.com/profile/15636670432046766373noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-19830864877604098272015-12-08T11:50:24.494-08:002015-12-08T11:50:24.494-08:00Mark, I'm not sure if you're still monitor...Mark, I'm not sure if you're still monitoring this blog, but I have completed SCOTS (for inherited macular degeneration) in August '15 , and went from 20/400 in both eyes to 20/30 in one eye and 20/40 in the other in a few months. It's no joke, and it's been verified by my retinal specialist at Vanderbilt Medical Center. There are U.S. Federal funding blockages for the study, which is why it is privately funded and therefore not covered for participants. It's Federally Approved as safe. Chrissy, I'd be glad to dialogue with you as well. Doug from NashvilleAnonymoushttps://www.blogger.com/profile/17123312503097082362noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-6249930712783716902014-02-07T16:01:03.691-08:002014-02-07T16:01:03.691-08:00Hi Mark,
That's a ridiculous amount of money!...Hi Mark, <br />That's a ridiculous amount of money! Trial participation shouldn't be paid for by patients! I'd be very careful. I'll have a look into it and see what I can find out. :)Chrissy Reneehttps://www.blogger.com/profile/03135586312372681795noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-34670723464493695562014-02-02T08:26:11.798-08:002014-02-02T08:26:11.798-08:00Hi Chrissy. I have macular dystrophy and I'm e...Hi Chrissy. I have macular dystrophy and I'm enrolled to participate in SCOTS clinical trial in a few months. I'm not sure if I am going ahead with it though because, unlike other trials, they charge participants US$20,000 for the procedure. There is a lot of talk about it over on investorstemcells wgether it is scam or not. Part of me wants to go ahead with it, but of course there are no guarantees.ahoy.markhttps://www.blogger.com/profile/06088825385596113447noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-51942864196297470142014-01-10T06:35:16.794-08:002014-01-10T06:35:16.794-08:00Hi Bryan,
I'm in Australia so not sure about ...Hi Bryan, <br />I'm in Australia so not sure about specialists in your area. Maybe try google or a facebook support group. Sometimes you need to shop around until you get answers. Chrissy Reneehttps://www.blogger.com/profile/03135586312372681795noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-1476451043788677322013-12-17T09:49:50.602-08:002013-12-17T09:49:50.602-08:00I have optic nerve damage and I was just curious t...I have optic nerve damage and I was just curious the other day as to the other eye diseases that are out there. Is there a knowledgeable optician that I can speak to in Fort Meyers, FL that can help me understand more about eye disease in general?<br />| www.associatesineyecarefl.comAnonymoushttps://www.blogger.com/profile/12921074560910247042noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-4048537515726413612013-12-17T09:48:14.834-08:002013-12-17T09:48:14.834-08:00Thanks for this I've been looking into eye dis...Thanks for this I've been looking into <a href="http://www.associatesineyecarefl.com/services.html" rel="nofollow">eye disease in Fort Meyers, FL</a> to help a friend out who has been having a lot of eye trouble and this gave me a lot of good insight.Anonymoushttps://www.blogger.com/profile/08937274097746662396noreply@blogger.comtag:blogger.com,1999:blog-8042257301491047451.post-83869546996079526902013-12-17T09:48:12.444-08:002013-12-17T09:48:12.444-08:00Thanks for the post! I know it is difficult to dea...Thanks for the post! I know it is difficult to deal with <a href="http://www.associatesineyecarefl.com/services.html" rel="nofollow">eye disease</a>. I watched my mom go through it, I know there is ways to help though. Anonymoushttps://www.blogger.com/profile/03168552337457060152noreply@blogger.com