Links

Useful links to help on your journey

Australian Charities

Guide Dogs NSW/ACT
Guide Dogs VIC
Guide Dogs QLD
Guide Dogs WA
Retina Australia
Blind Citizens Australia
Vision Australia

Worldwide Charities

Foundation Fighting Blindness USA
Guide Dogs of America
Royal Blind UK
Guide Dogs UK
Moorefields Eye Hospital UK
RNIB UK

Research

Lions Eye Institute Australia
Bionic Vision Australia
Ocata Therapeutics Stem Cell Research

Adaptive Technology

Quantum RLV
AI Squared
Freedom Scientific
NVAccess Screenreader

Other Blogs

Zoomed In by AI Squared
Low Vision Assistive Technology Users Group
Looking Through My Eyes - Florence, 12. Italy
Blind Girl Sees - Nysha. USA
Living With and Supporting Stargardt's Disease - Kayley Rose, UK
Are You Looking At Me - Heather, USA
The Ever Changing Perspective of Essceejulies - Sharina

What is Stargardt's?

Stargardt's disease (fundus flavimaculatus) is an inherited retinal disease usually caused by the recessive ABCA4 gene. The mutated gene causes cell dysfunction resulting in yellowish deposits in the retina, focused in the macular. This leads to the development of a blind spot in the central vision, which leads to legal blindness, although the peripheral vision usually stays intact. Colour vision can be affected and patients tend to be sensitive to light. The average age of onset is late adolescence.

At present, there is no treatment or cure.

See Through My Eyes - Stargardt's Disease

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