As we welcome a new year, we all hope that 2011 will bring a breakthrough for Stargardt's patients! Finger's are crossed!
I have been doing a social experiment over the last couple of months. My mum brought home from work goggles from Vision Australia that a person can put on to see what it looks like to have different eye conditions. Specifically interesting to us were the macular degeneration goggles. Igot friends and family to try on these glasses to see how they react to seeing through the eyes of a person with a macular problem, such as Stargardt's. Their responses were quite interesting:
"I'm never getting in a car with you again!"
"I can't see anything!!"
"There's a big white blob in the middle?! Is that right?"
Everybody was shocked. My eyes are not currently at this stage, but it was interesting to see how people reacted to having their vision impaired. It helped those around me to understand what I see and what I may be experiencing.
In response to my friend who remarked about my driving, I had to remind her I wear glasses for that reason and my eyes are not at that stage at this time! Yet other's can get the gist of what I mean when I say "I just can't see what's in the centre unless I look around it."
I feel that these goggles have been a useful tool and are great for helping others to understand my situation. It would be helpful if they were more widely available so our friends and family could understand our struggles even better!
Has anybody else had any similar experiences?