Saturday, February 28, 2015

Happy Rare Disease Day!

Today is Rare Disease Day to raise awareness about rare diseases and the impact these diseases have on people's lives. It is an international day held annually. 


Stargardt's Disease is considered a rare disease, with the incidence widely debated. Here are some statistics I can dig up about SD:


  • SD affects about 1 in 10 000, so in Australia there should be approximately 2 300 people with SD ( I know about 10 so the other 2 290 people please get in touch!). There should be appropriately 31 800 in the United States and 6 400 in the UK. 
  • SD accounts for 7% of all retinal degeneration. Other retinal degenerations include retinitis pigmentosa, Usher's disease and Leber congenital amaurosis.
  • SD is also knows as fundus flavimaculatus. I'm pretty certain this is what Harry Potter would have called it if he were diagnosed. 
  • It is thought that 5% of the population carry an abnormal gene for processing vitamin A. So 5% of the population have the possibility of developing a retinal disease.
  • 100% of those affected by SD are amazing people!

Here's the official video for 2015.


Spread the word and spread the love! 

To find out more information, see what events are being held locally and read other people's stories, check out these links:

Sources:

4 comments:

  1. I like your blog a lot. Its informative and full of information. I have created also a blog related with health and disease. If you could comment and suggest how to make more resourceful then I would really be glad. You have lot o experience in blog. I'm just new and my blog is just 22 days old. Plz free to comment on my blog its http://healthanddisease12.blogspot.com

    ReplyDelete
  2. I like your blog a lot. Its informative and full of information. I have created also a blog related with health and disease. If you could comment and suggest how to make more resourceful then I would really be glad. You have lot o experience in blog. I'm just new and my blog is just 22 days old. Plz free to comment on my blog its http://healthanddisease12.blogspot.com

    ReplyDelete
  3. Natural herbal remedy of Natural herbs clinic is one of the successful retinitis pigmentosa treatment in world without any side effects.

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  4. At present, there is no Retinitis Pigmentosa Treatment for long term to stop the movement of any retinal dystrophies. Natural treatment of Retinitis Pigmentosa with Herbal Remedies is useful to fight with this disease.

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