Drug Trial of ALK-001
Alkeus Pharamceuticals are conducting a phase 2 trial of an oral drug in the United States. A phase 2 trial looks at the safety of the drug, what side effects it may have, how long it stays in a person's body and the dosing required. This study will also look at whether it affects the progression of Stargardt's. The trial will follow participants over two years assessing these key factors. For more information click here. If you are located in the United States and are interested in finding out more about participating in the trial visit their website here.
Phase 1 Trial using Gene Therapy in the US and France
This is a gene therapy trial currently recruiting in the US and France. It is a phase 1 trial thus the main focus is on looking at the dose of the sub-retinal injection and the effects it may have. If you are interested in participating, the two centres involved are the Casey Eye Institute in the US and the Centre Hospitalier Nationale d'Ophthalmologie des Quinze-Vingts in France. For more information on the specifics of the trial click here.
Stem Cell Trials
The stem cell trial using human derived embryonic stem cells (hESC) I have previously mentioned is still in progress. This trial is run by Ocata over three sites in the US (California, Florida and Pennsylvania). The trial involves an injection of the stem cells into the retina. The researchers will be observing the participants over a 15 year period to monitor the progression of the stem cells, whether they become retinal cells, how this affects vision and if there are any long term complications. More information can be found here and here.
Investigative Research
There are a couple of research projects taking place looking at different aspects of Stargardt's Disease such as its progression. It is important that researchers continue to look at the how, what, where and why of SD to better understand the disease as we don't have a lot of information about it. This information can then be used for targeted treatments and even prevention of disease progression. These projects are always good to participate in because they involve little risk (unlike treatment trials) as they simply gather information, test results and images. The more participants these types of studies get the more information can be gathered and learnt about a condition.
The National Institute for Health Clinical Centre in Maryland, USA, is currently recruiting for a natural history study of SD. If you are interested in participating check out their website.
The other project is the Inherited Retinal Degenerative Disease Register which is not only for SD but other inherited retinal diseases. This is run by the Foundation Fighting Blindness and more information can be found here.
Thank you for this vital information, appreciate your blog & subsequent Facebook posts.
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ReplyDeleteHello everybody,
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I’m Mark Russ , I contracted HIV in 2009, I was told by my doctor that
ReplyDeletethere’s no possible cure for HIV. I started taking my ARV’s, My CD4 was 77
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ReplyDeleteAm jeremiah, I am testifying about a great hebal man that cured my wife of hepatitis B and liver cirhosis. his name is Dr oniha. My wife was diagnose of hepatities two years ago, i almost spent all i had then, until i saw dr oniha recommendation online, and i call him, then he told me how to get the herb. You can call him on +2347089275769 or email him at dronihaspell@yahoo.com
I'm 15 years old. I was born with HIV my mother passed away because of the HIV infection And I regret why i never met Dr Itua he could have cured my mum for me because as a single mother it was very hard for my mother I came across Dr itua healing words online about how he cure different disease in different races diseases like HIV/Aids Herpes,Parkison,Asthma,Copd,Epilepsy,Shingles,Cold Sore,Infertility, Chronic Fatigues Syndrome,Fibromyalgia, Diabetes Hepatitis even Cancer I was so excited but frighten at same time because I haven't come across such thing article online then I contacted Dr Itua on Mail drituaherbalcenter@gmail.com I also chat with him on what's app +2348149277967 he tells me how it works then I tell him I want to proceed I paid him so swiftly Colorado post office I receive my herbal medicine within 4/5 working days he gave me guild lines to follow and here am I living healthy again can imagine how god use men to manifest his works am I writing in all articles online to spread the god work of Dr Itua Herbal Medicine,He's a Great Man.
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ReplyDeleteThere is nothing positive about cure ALS condition except for their herbal treatment .
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HOW I GOT CURED FROM HERPES,Greetings to the general public, i want to tell the world about Dr Goodwin, How i was cured of HERPES disease by a Doctor called Dr Goodwin, i wasbrowsing through the Internet searching for cure on HERPES and i saw comment of people talking about how Dr Goodwin cured them. I Was scared because i never believed in the Internet but i decided to give him a try because i was having no hope of been cured of this VIRUS. so i decided to contact him with his email that was listed on the comment when i contacted him he gave me hope and sent a Herbal medicine to me that i took and it seriously worked for me, now i'm a free person now without sickness, my HERPES TEST result came out NEGATIVE. I pray for you Dr Goodwin, God will give you everlasting life, you shall not die before your time for being a sincere and great man. I'm so happy. You can also contact him if you have any problem via Email: drgodwinsolutionhome@gmail.com or whatsApp him on this number +2348054615060. HE ALSO CURES OTHER DISEASES LIKE (1).HERPES CURE(2).ALS (3).HEPATITIS B(4).HIV/AIDS CURE(5).HPV CURE(6).SPIRITUAL HEALINGS(7).CANCER (8).ASTHMA(9).DIABETES
ReplyDeleteI have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year, I had faith in God that I would be healed someday.This disease started to circulate all over my body and I have been taking treatment from my doctor, a few weeks ago I came on search on the internet if I could get any information concerning the prevention of this disease, on my search I saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr. Nicolas and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so I wrote to Dr. Nicolas telling him about my (HERPES Virus) he told me not to worry that I was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later I started experiencing changes all over me as the Dr. assured me that I have cured, after some time i went to my doctor to confirmed if I have been finally healed behold it was TRUE, So friends my advice is if you have such sickness or any other at all you can email Dr. Nicolas (drnicolasherbelhome@gmail.com) sir I am indeed grateful for the help I will forever recommend you to my friends!!! with your lovely Email Address ( drnicolasherbelhome@gmail.com
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ReplyDeleteOr Cell Whatsapp Number +2348101755322 thank you .....
I Want To Appreciate Dr.OYAGU for hs great deeds, I Was Diagnosed With type 2 Herpes Virus Last year,And Was Look For Solution To Be Cured Luckily I Saw Testimonies On How Dr.OYAGU Cure Herpes Virus I Decided To Contact Dr.OYAGU I Contacted Him He Prepared A Herbal Medicine Portion And Sent It To Me,I Started The Herbal Medicine For My Health.He Gave Me Step By Step Instructions On How To Apply It, When I Applied It As Instructed, I Was Cured Of This Deadly Herpes Within 2 weeks, I Am Now Herpes Negative.My Brother And Sister I No That There Are So Many People That Have There Same Herpes Virus Please contact Dr OYAGU To Help You Too,And Help Me To Thank Dr.OYAGU For Cure Me, I’m Cured By Dr. OYAGU Herbal Medicine,His Contact Email:oyaguspellcaster@gmail.com
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Oh my goodness. God have done a miraculous thing in my life and my family's. I didn't believe on herbal medicine at first. But I most say that there is a power in herbal medicine than drugs. Because I have been taken drugs over a Couple of years before I might this great Dr. Who cure me from HIV virus. I thank Doctor Ogudu who gave me a herbal medicine to use, that cure me from HIV Virus. Contact this great Doctor at via WhatsApp. +2349050853949. Get a cure for HIV virus/ Cancer and diabetes. Get in touch with him
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i want to inform the public how i was cured of HERPES Simplex Virus by a Doctor called Dr.EBHOTA. i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on HERPES and i saw comment of people talking about how Doctor EBHOTA cured them. I Was scared because i never believed in the Internet but i was convince to give him a try because i was having no hope of been cured of HERPES so i decided to contact him on his email, i searched his email on net and i saw a lot of people testifying about his goodness. when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, am a free person now without problem, my HERPES result came out negative. You can contact him on
ReplyDeletehis Email: drebhotasolution@gmail.com or whatsapp him on +2348089535482 and get all your problem solved.
1Sickness of any kind
2 Help to CURE Hepatitis B, HIV/AIDs CANCER and BIPOLAR
3 Divorce, Breakup problem and To Re-unit
4 Pregnancy problem
5 Financial problem and Job promotion
6 To get a good and rich life partner
7 To Lose your wath
8 to enlargement of pennis
9. CANCER
10. ALS (Lou Gehrig's disease)
11 Hepatitis B
12 chronic pancreatic
13 emphysema
14 COPD (chronic obstructive pulmonary disease)
HELLO EVERYONE.. FEW MUNINETS TO REDY THIS INFOR ON HERPES CURE 2018..
ReplyDelete2017 MY MOTHER WAS DIAGNOSED OF HERPES/ KNOWN AS GENITAL WARTS ,I SPENT A LOT OF MONEY ON HER MEDICATION TILL A POINT I EVEN LOST HOPE,BECAUSE MY MOTHER WAS GRADUALLY DYING AND LOST HER MEMORY TOO, I WAS SO DESPERATE TO GET MY MOTHER BACK TO NORMAL, ONE DAY MY UNCLE WHO LIVES IN LONDON UNITED KINGDOM TOLD ME ABOUT DR OLIHA ,WHO HELPED HIM GET RID OF HERPES /GENITAL WART WITH HERBAL MEDICINE AND HIS HERBAL SOAP ,I WAS SO SHOCKED WHEN HE TOLD ME ABOUT THIS ,ALTHOUGH I NEVER BELIEVE IN HERB BUT, I KEEP TO BELIEVE BECAUSE MY UNCLE CAN'T TELL ME LIES WHEN IT COMES TO HEALTH CONDITION I CONTACTED DR OLIHA VIA HIS EMAIL; OLIHA.MIRACLEMEDICINE@GMAIL.COM , YOU CAN TALK TO HIM VIA CALL OR WHATSAPP MESSENGER ON +2349038382931 , HE REPLIED AND ASK ME TO SEND MY HOME ADDRESS AND MY MOTHER'S DETAIL AND THEN I PURCHASED THE HERBAL MEDICINE,SENT ME THE HERBAL MEDICINE THROUGH COURIER SERVICE, WHEN I RECEIVED THIS HERBAL MEDICINE USED IT FOR 2 WEEKS, AND 4 DAYS OF USAGE THE WARTS FELL OFF, MY MOTHER I NOW TOTALLY CURED AND MY MOTHER IS LIVING FREE AND HAPPY AGAIN. YOU CAN TALK TO DR VIA HIS MOBILE NUMBER OR WHATS APP HIM ON +2349038382931.ALL THANKS TO DOCTOR DR OLIHA
FINALLY FREE FROM HERPES VIRUS. what a miracle i never believe there is cure because my doctor tested me herpes positive and she told me there is no cure, i’m very happy today that i’m having a free life without this herpes virus, i can remember some months ago when i was crying all through the night and day that i can’t get cured from this herpes, i found this herbal man called Dr sunnyna on internet when i was doing research on cure for shingle i contacted him to found out if i can get help from this herpes virus, i was so surprise when he told me that he have the herbs cure to it and he sent me the herbal in less down 5 days i was so happy when i get someone giving me hope that he can cured me i took the herbal for just 2 weeks, when i went for test after taking the herbal i found out that i am cured i was so happy and surprise, i want to use this opportunity to inform you that there is cured to herpes virus you can also contact him for his help as soon as possible so that you can get rid of this herpes once and for all you can reach him through this email: drsunnyna@gmail.com or whatsApp him on +2348077875210 You can also contact him on any disease and virus in this he all have the herbal cure to it. 1 HIV/AIDS 2 HERPES 3 CANCER 4 ALS 5 HEPATITIS 6 DIABETES 7 LOVE SPELL 8 INFECTIONS 9 HIGN BLOOD PRESSURE,..... THANKS TO DR SUNNYNA FOE THE GOOD WORK IN LIFE YOU BLESS.....
ReplyDeleteI’m here to testify about what Dr Samuel did for me. I have been suffering from (GENITAL HERPES VIRUS) disease for the past 4 years and had constant pain and inching, especially in my private part. During the first year, I had faith in God that i would be cured someday.This disease started circulating all over my body and I have been taking treatment from my doctor, few weeks ago I came across a testimony of Rose Smith on the internet testifying about a Man called Dr Samuel on how he cured her from 7 years HSV 2. And she also gave the email address of this man, advise anybody to contact him for help on any kind of diseases that he would be of help, so I emailed him telling him about my (HSV 2) he told me not to worry that I was going to be cured!! Well, I never doubted him I have faith he can cure me too,, Dr Samuel prepared and sent me Healing Oil, Soap, roots and herbs which I took. In the first one week, I started experiencing changes all over me, after four weeks of using his Roots/ Herbs, Oil and Soap, I was totally cured. no more inching , pain on me anymore as Dr Samuel assured me. After some time I went to my doctor to do another test behold the result came out negative. So friends my advise is if you have such disease or know anyone who suffers from it or any other disease like HPV, HBV, HIV, ALS, HBP, CANCER etc. you can contact Dr.samuel for help via dr.samuel 245@gmail.com or whatsapp +2348166600171
ReplyDeleteI GOT CURED FROM HERPES VIRUS I was diagnosed of HERPES virus and i have tried all I can to get cured but all to no avail,,until I saw a post in a health forum about a herbalist man who prepare herbal medications to cure all kind of diseases including #HERPES virus,at first I doubted if it was real but decided to give it a try,when I contacted this herbalist via his email and he prepared a #HERPES herbal cure and sent it to me via DHL delivery company service, when I received this herbal medicine, he gave me step by direction on how to apply it,after applying the way I was instructed,I was totally cured of this deadly disease called HERPES, all thanks to Dr OGODO Email this great herbal doctor via his email Ogodoherbalhomesolution@gmail.com
ReplyDeleteYou can also WhatsApp him on +2349044680467
HE CAN ALSO CURE SICKNESS LIKE
{1}HIV/AIDS
{2}DIABETES
{3}EPILEPSY
{4} BLOOD CANCER
{5} HPV
{6} ALS
{7} HEPATITIS
{8}LOVE SPELL
{9} SICKLE AND ANEMIA
Only DR OGODO Can Help You I Love You Father
ReplyDeleteI am so Happy to be writing this article in here, i am here to explore blogs forum about the wonderful and most safe cure for HERPES SIMPLEX VIRUS.I was positive to the Virus called HERPES and i lost hope completely because i was rejected even by my closet friends. i searched online to know and inquire about cure for HERPES and i saw testimony about DR Ebhota online on how he cured so many persons from Herpes Disease so i decided to contact the great herbalist because i know that nature has the power to heal everything. i contacted him to know how he can help me and he told me never to worry that he will help me with the natural herbs from God! after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via FEDEX or DHL and it got to me after 4 days! i used the medicine as he instructed me (MORNING and EVENING) and i was cured! its really like a dream but i'm so happy! that's the reason i decided to also add more comment of Him so that more people can be saved just like me! and if you need his help,contact his Email: (drebhotasoltion@gmail.com) You can contact him on WhatsApp +2348089535482 He also have the herb to cure difference cure for any sickness (1) HERPES,
(2) DIABETES,
(3) HIV&AIDS,
(4) URINARY TRACT INFECTION,
(5) HEPATITIS B,
(6) IMPOTENCE,
(7) BARENESS/INFERTILITY
(8) DIARRHEA
(9) ASTHMA..
Does anyone still doubt natural herbs? I've seen the great importance of
ReplyDeletenatural supplements and the wonderful work they have done in people's
lives. I wonder why people still spend their money on surgery, injections
and drugs each time they are sick. Natural herbs can cure all kinds of
illness. My Herpes virus was totally reversed with natural herbs this year.
Earlier this year my sister who lives in New Delhi India Purchased HSV
herbal remedy from Dr Omola and he told her that his HSV herbal remedy only
takes five weeks to reverse HSV completely, which she didn’t’ believe, but
she had no choice than to purchase, because she knew COLD SORES was killing
me slowly. When I received the herbal remedy, I only used it for five
weeks, it was so shocking to see the outcome, all my cold sore disappeared
and my HERPES VIRUS was fully reversed. I know it is hard to believe but am
a living testimony, There is no harm in trying natural herbs supplements.
Contact Dr Omola for his herbal remedy today... Email;
dr.omolaherbalhome@gmail.com Call/Whatsapp +2348118116254 for more
information Thanks
Oral herpes is a bothering virus, but overcoming is possible! Carol from Texas was diagnosed with genital herpes type 1 (hsv1), and she choose dr.omolaherbalhome@gmail.com for treatment where she heard and read about Dr. Omola on a forum. After Three weeks of herbal medication she went for test and was tested negative HSV 1 after hearing her testimony I gave it a trial and I was completely cured you can reach Doc via dr.omolaherbalhome@gmail.com or WhatsApp's via +2348118116254.
ReplyDelete