I've begun a blog to help gather all the information around about Stargardt's Disease (aka Fundus Flavimaculatus) and to gather support amongst others who have also been diagnosed with the condition.
A little background about myself: I am 24 years old, living in Sydney Australia, and was diagnosed with Stargardt's at the end of 2009 (awesome Christmas present!). It was suspected that I had had the condition for some years, yet it went undiagnosed. It came as a great shock to me, especially since my mum and I had spent weeks googling possible conditions that I may have after it wasn't an easy "prescribe some glasses and you'll be right" case. We had come across Stargardt's in our research but instantly dismissed it, probably due to the fact it had no treatment and we didn't want to think of it as a possibility. But after many tests, dilated pupils and several electrodes being placed in my eyes, a conclusion was finally drawn. I was then sent on my way to deal with it and pray for someone somewhere to do something about it as nobody else could.
I am to find out as much information as possible about research, treatments and support, and would love to hear everybody else's stories.