I've decided to try and organise purchasing my own adaptive technology for work and studying as I seem to just not be able to make it happen any other way. Since I am in between jobs, I find it really hard explaining to new or prospective employers about the condition and what I need to help me work. I also sometimes feel that some workplaces see it as a hindrance, so if I can have all my equipment and bring it in on day one, it just seems so much easier.
One thing I am really looking forward to getting is a hand held CCTV. I am also super keen to purchase one to help me with studying, as reading my textbooks are like torture and I constantly get a sore neck (which serves as a great excuse to get a massage). I was lucky to have Vision Australia lend me one to try out previously and have picked the Compact Plus mostly because it has a big screen and can magnify up to 10 times.
Quantum based in Sydney, provides such equipment and the one that I am keen to get my hands on. Not only do they have my CCTV but also ZoomText and other adaptive technology like larger CCTV monitors and equipment that converts text to speech.
At the moment there are only a few things that I feel I need to help me feel more comfortable at work, yet this website has so many other gadgets and software that would be beneficial in the future for me and would be beneficial to those who are at a later stage of the disease.
In the past few weeks I have noticed that in the dark I can see less and less. It's starting to scare me just a tad.
I find it quite confronting looking ahead and not being able to decipher what is happening. It seems like all the lights merge together in a big blur and I have to concentrate very hard to figure out what is going on. All I want to to is be able to see the distance clearly.
Another thing I noticed a while back was the fact that when I look up at the moon I can't see it! If I look above or below it I can see it in my peripheral, but you can't see it very well because it's so far away. I want to be able to look up at the moon again!
This has brought up, for me, how badly I want someone somewhere in the world to find a treatment and help us all out. It can be quite distressing at times, and I'm sure I'm not the only one that feels scared and helpless and quite stressed about the situation.
So once again, I'm hoping and have my fingers and toes crossed that a breakthrough is made very soon and we can all celebrate!
This is for all the Aussies reading my blog - Free glasses!!
A friend informed me of a website that were giving away free glasses, lenses and all, and all you need to do is pay the postage. I was skeptical but since I have sat on my glasses and they are lopsided I though it was worth a try since the frames that I choose tend to be the most expensive frames available.
All you need to do is 'like' their Facebook page and then you can go to the page that says "Free Glasses". There are codes for the specific dates that they are giving away free glasses. There looks like there are three more days that you can grab free glasses.
I picked out a nice pair of Guess glasses and received them about a week later and they were perfect!! So check out the link below and grab your free glasses! I am definitely going to get another pair!!
